Showing posts with label corn. Show all posts
Showing posts with label corn. Show all posts

Tuesday, January 22, 2013

Drum Roll Please.....Scope #7 Results


Again, I received a phone call from Dr. Putnam on Friday but waited until I received the pathology reports to post this entry. Because Dr. Putnam was only concerned with Lucas' upper and lower esophagus, there were no samples taken from the Duodenum 3rd and Body/antrum.

(A) Distal esophagus (bottom of the esophagus)

(B) Proximal esophagus (top of the esophagus)

Sample A showed a peak count of 24 eosinophils per high powered field. And Sample B showed a peak count of 0 eosinophils per high powered field once again!

To compare from his previous scope in September, Sample A decreased quite a bit from 63 to 24. Sample B came back CLEAN again. Woohoo!!!!

So good news.....

Lucas continued to scoped CLEAR in his upper esophagus!!!!!! Also, his lower esophagus is looking so much better. The increase in the dosage and amount of the PPI has helped quite well.

After receiving the wonderful news from Dr. Putnam, we broke down Lucas' medications and what foods he's been off of and which ones he has reacted to previously. We were trying to determine what to trial.

The medications:
  • -Zyrtec 5mL 1x/day
  • -Nexium caps 20mg 2x/day
  • -Pulmicort slurry .50mg/2mL 2x/day


Restrictive diet:
  • Wheat
  • Eggs
  • Soy
  • Fish (fish and shellfish)
  • Nuts (peanuts and tree nuts)
  • Oats
  • Corn
  • Dairy
What he's reacted to via skin contact (IgE reactions):
  • Wheat
  • Eggs
  • Oats (very slightly)
  • Lobster (very slightly and he's never had lobster)
  • Corn (only thing he reacted to on the patch testing
What we know he's reacted GI-wise:
  • Dairy
After much thought, Dr. Putnam has allowed Lucas to give peanuts a try. He told me to give Lucas either peanut butter or peanuts at least 5 of the 7 days a week. If he's doing well, then he'll be scheduled for another scope in 3 months. If he begins to have symptoms, we are to call Dr. Putnam. At that time, depending on how reactive/symptomatic Lucas is will depend on what and when Lucas will trial next. We are hopeful that peanuts will be able to be safe but only time and Lucas' body will tell. 

I will say, Lucas was so excited to finally start to trial something. He called me Friday night from Daddy's phone to tell me that he was about to eat a peanut butter sandwich (on his safe bread) and he couldn't wait to try it. For his sake, I hope it works. But if not, we will cross that bridge. 


Monday, September 10, 2012

And Here We Are Again, # 6

It's been 3 months since our last visit and this go around we were meeting with our new GI doctor, Dr. Putnam. But before we headed to Cincinnati, Lucas had his very first soccer game. He was super excited and couldn't wait to show his moves.
He really enjoyed playing and I had a really fun time watching. I never thought I'd be a soccer mom but I'm loving it. 

His coach was great. He did a great job rotating the kids and switching up their positions. At the end of the game, he had them huddle together. Their team won by the way, 3-0!!!!
After the game, we left for Cincinnati. Mimi (my MIL) traveled with us. My FIL was kind enough to use his Best Western Rewards Points on a free room for us to stay in. After checking into the hotel, we headed to a fellow EoS family's house. The Simmes were gracious enough to invite us over so Lucas and her boys could hangout together. 

We left and headed back to the hotel. Lucas took a much needed bath and got ready for bed.
He was so wound up it took him almost an hour to fall asleep. He had such a blast playing with the Simmes kids. He woke up pretty easily but wasn't too thrilled to be up before 7am.
We made our way to the hospital. It's been over a year since we were last at the main campus but it felt good being back there. We first met with Dr. Putnam in the clinic. Ms. Simmes had given me some advice the night before about Dr. Putnam. She said that he's soft spoken (confirmed), blunt (confirmed), and great with kids (also confirmed). The younger Simmes brother actually calls him Dr. Funny. Lucas warmed up to him great. When Dr. Putnam came into the room he immediately spotted the bug shirt Lucas was wearing and commented on it. Then he asked Lucas his name, which Lucas replied, "Ummm Lucas". He spoke with us and gave Lucas a look over, joking about where his belly is and whatnot.

We left the clinic and had a few minutes before we needed to report to Same Day Surgery. We headed to the cafeteria to check out their selection of Enjoy Life Brand Foods since the hospital is the only of it's kind to offer Enjoy Life products outside of grocery stores. We found a new flavor cookie for Lucas. We planned to return after the scope.

We reported to Same Day Surgery and did the usual check in, go over medical chart. The nurse brought in some cars for Lucas to play with.
He also set up camp on the floor to color. Little Foot (aka Baby) and blankie made their appearances. I don't think either one has missed out on a scope. The nurse checked his vitals.

After the nurse left, I got wind that Ms. Simmes was in the waiting room (the younger Simmes boy was having surgery to help with his tube placement). I went out and chatted with her a bit. Shortly, a fellow EoS momma showed up, Ms. Scott. She's an RN there and happened to walk through Same Day Surgery (although I'm pretty sure she knew Ms. Simmes would be there). Ms. Simmes got the call that her little man was ready in recovery. Ms. Scott came back with me to our room and chatted a bit. It was great to see both moms and to have a little community who can relate. Even Dr. Putnam stopped by to say hi.

Transport came in right on schedule to wheel Lucas back.
With Little Foot and blankie in tow he was set. He chose the bubblegum flavored air. Dr. Putnam introduced Lucas to the surgical team as "Ummm Lucas" and that he was about to turn "Ummm 5". The team, Lucas and us were laughing. Once he was under, I kissed his forehead, told him I loved him and headed to the waiting room. We met with Dr. Putnam in consultation. He mentioned that Lucas' lower esophagus looked inflamed and when taking the biopsy sample it felt leathery. He didn't give much information because he wants to look at his past scopes. He said we didn't need to return in a week only that he or his nurse Betsy will call.

Once he was awake, we were escorted back to the recovery room. Our nurse was super friendly and Lucas looked a little less than thrilled.
He was really thirsty and demanded Lemon Lime Gatorade. And he wanted his IV out.

After guzzling the first can of Gatorade, the nurse kindly removed his IV and used a spray that helps the adhesiveness from hurting. He was cracking me up because once she removed it, he kept his hand like this for at least 5 or so minutes.
After guzzling his SECOND Gatorade, he announced that he had to potty. I carried him to the bathroom, only to discover that he didn't have to go number 1 but had to release the loudest and longest fart ever. All I could do was laugh. Once he was ready, he got dressed and we told the nurse that we planned to head to cafeteria to grab a bite to eat. She brought back a wheelchair, the wrong one. She brought the typical one and Lucas once again, demanded for the race car wheelchair. We loaded him up. This go around he was freezing, so the nurse graciously offered him a heated sheet to wrap around him.


She wheeled him down to the first floor, then turned us loose with the wheelchair to head to the cafeteria. His grub of choice was a few Enjoy Life Happy Apple cookies, two bags of Lays potato chips and water. After we finished we headed home. He played his Vtech Mobigo all the way home. Once home, he was raring to go. Now the hard part, waiting on what happens next.

Overall, today's scope went well. Lucas, like many EoS kids, has become a seasoned pro at scopes. He did tell Dr. Putnam that if he is able to add a food back he either wanted it to be nuts or soy. 

Lucas and I had a conversation before bed last night about the possibility of adding foods back. I asked him what does he want most back. He said, "I have two. Corn and nuts." I told him that corn was a no go, at least it will be for quite some time. So he changed corn to soy. I told him that both of those options were great choices. Then we discussed how corn, dairy, wheat and eggs will probably be off the list for awhile. He seemed content and understanding, knowing why those foods are not options.

Thanks for reading this novel of a post. I'll update again when we get results and what the next phase will be.


Thursday, September 22, 2011

Follow Up..8 Weeks

We returned to Cincinnati this morning for the 8 week follow up visit since we were last there. Here's Lucas coloring on the floor while we waited for Dr. F.
He's gained 1lb since July and grown very minimally.  I caught Dr. F up to speed on what's been going on since our visit. I really like how open he is. He seems to listen and gives feedback but takes my personal feelings into account. He mentioned something about possibly eliminating milk but said we can wait until after his next scope. He said Lucas definitely has EoE but the reflux in conjunction is still up the air until he is scoped. I told him about an unprompted conversation Lucas and I had the night before. Lucas was taking his nightly meds and asked me why he doesn't take his Flovent anymore. I told him that Dr. F said he didn't need to right now. He said he missed his Flovent and that it made him feel better. I asked him if he liked the Nexium and he said no and that it doesn't make him feel good. We are holding off on the Flovent (or Pulmicort) until after the next scope. Dr. F wants him to stay on the Nexium until he is scoped to see if it is having any effect on the eosinophils. 

So here's the next steps:
-Continue with Nexium
-Continue with strict elimination of wheat, eggs, and corn
-Re-scope date is set for mid-November w/ follow-up/results the week after
-Reevaluate treatment plan after scope

I'm pretty satisfied with the visit. Much better than any of our visits with the local GI. After the visit, we met a fellow EoS family at the Cincinnati Zoo. We had a great time. We saw lots of animals and some *shiver* creepy insects. We rode the train and the carousel. 

That's his new buddy Caleb. Caleb also has EoE. We stopped to eat on the way home. That was a complete bust. While I ordered him grilled chicken (which he didn't get to eat) and french fries, he proceeded to vomit all over the table, chair, floor and himself. Luckily, I had a change of clothes for him and my mom was with us. The staff at the restaurant were awesome in helping us, my mom gave the waitress and generous tip! This episode does make it the third this week. 

Until next time!

Wednesday, September 14, 2011

The latest development

After 4 weeks of attempting the wheat, egg, and corn free diet in addition to the Nexium, I called to check in with Dr. F's nurse. I explained to her what's been going on and how Lucas has been doing. She seemed a little disappointed that he wasn't on the diet exclusively. Let me say that while I tried my best (and I know I slipped a few times) to make sure he was given foods that didn't contain any wheat, eggs, or corn, it's easy for other family members to forget. The nurse did give me a good analogy to help explain to family members: 


When he eats foods that contain the allergens he may not show outwardly symptoms or it can take a few days for symptoms to present themselves but internally on a cellular level those foods containing the allergens are doing him harm.


Makes sense and I totally understand where she is coming from. We go back next week for an 8 week follow up. She didn't want to give us a scope date because of this latest development. Ideally, they want the child to be exclusively on the diet (without "contamination") for at least 8 weeks. I'm hoping that when we visit next week and discuss his progress further, that we do get the scope date. That will at least give me something to hold onto and KNOW that his diet has be a certain way. 


I have been working hard and teaching him which foods he can and cannot have. At his age, 1) he needs to know what makes him sick 2) when he is with others who are not familiar with his situation, he can inform them and 3) so he can educate others when I'm not around.


He is doing good and handling the food situation fairly well. He still gets bummed over some foods but he's accepting it. He's taking the Nexium like a pro and doesn't complain about taking it.

Sunday, August 28, 2011

Tomorrow begins a new test

For two weeks, Lucas has been on the Flovent, Nexium, and food elimination (wheat, eggs, and corn). Tomorrow, we remove the Flovent once again. I'm hoping for the best. He's had 2 episodes and those seem to be when he's sleeping. Again, I didn't hear him cough in the middle of the night to know when he's doing it. I only know because his sheets/covers/PJs are covered in dried up vomit.


The diet seems to be going well. It isn't easy but it's getting better and more manageable. I have let Lucas help make some of his food and he's been helping pack his lunch for school. We've talked to him about wheat, eggs, and corn and what those types of food do to him. He does get disappointed when he can't have something but I'm doing good about highlighting what he CAN have.


We went out to dinner a few days ago. I ordered Lucas grilled chicken and fries. For the first time that I can remember, he DIDN'T cough during the meal. It was refreshing and gave me some reassurance. It's a moment that I will hold on to. Just like when he rolled over for the first time or took his first steps. I know he has a long road ahead of him so I'm enjoying these small victories.


My hope for the next two weeks is that he continues to do good with the Nexium and elimination diet. I check back in with the nurse at that point. I'm a little nervous about removing the Flovent again but it's the only way for now to know how he's truly doing.