The past two weeks

I feel so emotionally fragile and drained today. It's awful and I hate the world and most people (only few that I don't). After two weeks of Lucas being on Nexium, he's not doing too good. He's been off the Flovent for over a week now. He's been having more episodes of vomiting and it's not been fun. He threw up twice overnight in the past week and he hasn't done that in a looooong time.

I know I was suppose to wait and call the nurse after 4 weeks of being on this current treatment plan but I couldn't wait any longer. I called today and the nurse (Jo) is out on vacation. So I left a message for the nurse covering her calls this morning. By early afternoon I received a call from the nurse (Ann) and told her what's going on. By the end of the conversation, I was in tears. I just couldn't hold it in any longer. She asked if I was okay. I wanted to say yes but all I could do was say no. Unfortunately I was at work so I had to suck it up and get back to work. A few hours later, Dr F called me. Again I had to tell him what's going on. I was much better at holding in my emotion. It was refreshing to feel like I was able to contribute in the direction of his care. I told Dr F my concerns and he listened.

We reassessed the treatment plan as follows:
-Continue with the Nexium twice a day
-Begin food elimination of wheat, eggs, and CORN for a minimum of 4 weeks
-Restart the Flovent twice a day for 2 weeks to help heal his throat some from the recent episodes
-Call back in said 4 weeks to check-in

I felt better after talking to Dr F. Much more than after talking with the nurse (Ann). It's just so frustrating.

The next 4 weeks are going to be brutal. But I know we can do it. I know Lucas will be better off. We just have to be more diligent and careful. We will have to educate anyone who plans to give him any food to read the label and make sure it's something he can eat. Tonight, before bed I talked to Lucas and told him that he won't be able to have certain foods. He seemed a little sad but I tried really hard to name some of the foods he CAN have and he got excited. I'm trying really hard to be positive. I'm hoping that he will branch out and try new foods because I am. I've been a picky eater my entire life and I'm trying to be brave and at least give new foods a try.