Again, I received a phone call from Dr. Putnam on Friday but waited until I received the pathology reports to post this entry. Because Dr. Putnam was only concerned with Lucas' upper and lower esophagus, there were no samples taken from the Duodenum 3rd and Body/antrum.
(A) Distal esophagus (bottom of the esophagus)
(B) Proximal esophagus (top of the esophagus)
Sample A showed a peak count of 24 eosinophils per high powered field. And Sample B showed a peak count of 0 eosinophils per high powered field once again!
To compare from his previous scope in September, Sample A decreased quite a bit from 63 to 24. Sample B came back CLEAN again. Woohoo!!!!
So good news.....
Lucas continued to scoped CLEAR in his upper esophagus!!!!!! Also, his lower esophagus is looking so much better. The increase in the dosage and amount of the PPI has helped quite well.
After receiving the wonderful news from Dr. Putnam, we broke down Lucas' medications and what foods he's been off of and which ones he has reacted to previously. We were trying to determine what to trial.
The medications:
- -Zyrtec 5mL 1x/day
- -Nexium caps 20mg 2x/day
- -Pulmicort slurry .50mg/2mL 2x/day
Restrictive diet:
- Wheat
- Eggs
- Soy
- Fish (fish and shellfish)
- Nuts (peanuts and tree nuts)
- Oats
- Corn
- Dairy
What he's reacted to via skin contact (IgE reactions):
- Wheat
- Eggs
- Oats (very slightly)
- Lobster (very slightly and he's never had lobster)
- Corn (only thing he reacted to on the patch testing
What we know he's reacted GI-wise:
- Dairy
After much thought, Dr. Putnam has allowed Lucas to give peanuts a try. He told me to give Lucas either peanut butter or peanuts at least 5 of the 7 days a week. If he's doing well, then he'll be scheduled for another scope in 3 months. If he begins to have symptoms, we are to call Dr. Putnam. At that time, depending on how reactive/symptomatic Lucas is will depend on what and when Lucas will trial next. We are hopeful that peanuts will be able to be safe but only time and Lucas' body will tell.
I will say, Lucas was so excited to finally start to trial something. He called me Friday night from Daddy's phone to tell me that he was about to eat a peanut butter sandwich (on his safe bread) and he couldn't wait to try it. For his sake, I hope it works. But if not, we will cross that bridge.
Hi Leah,
ReplyDeleteI just came across your post. My nephew (age 8) was just diagnosed with EE. My sister is on overload trying to process what this means with regards to meal planning. (my niece, her other child has Celiac disease) Do you have any recommended cookbooks or websites you would recommend? My nephew is on a very similar elimination diet. Any input would be so so much appreciated. Thank you!!! And thanks for blogging about your experience. It's already very helpful to us as we begin our journey with EE.
- Colleen
If your sister is active on FB, I can friend her and introduce her to several private groups. She can look at www.apfed.org or www.curedfoundation.org to get more information about EE. It's an overwhelming diagnosis and trying to do an elimination diet is daunting but it gets better. She just needs to read all the labels on products. We have some pretty trusted products that my son loves. Grocery shopping gets better. I'm glad my blog has been helpful for you all. She's not alone in this journey.
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